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Rett Syndrome Family Resources RettSearch: The International Consortium of Rett Syndrome Clinical Researchers [http://rettsearch.org]

International Rett Syndrome Association

National Institute of Neurological Disorders and Stroke

NIH Office of Rare Diseases

National Organization for Rare Disorders

Rett Syndrome Research Foundation

Suggested Reading

Icon Health Publications. Rett Syndrome: A Medical Dictionary, Bibliography, and Research Guide to Internet References. San Diego: Icon Group International, 2003.

Icon Health Publications. The Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory for the Internet Age. San Diego: Icon Group International, 2002.

Kerr A, Engerstršm IW. The Rett disorder and the developing brain. Oxford: Oxford University Press, 2001.

Hunter, Kathy. The Rett Syndrome Handbook. Clinton, Maryland: International Rett Syndrome Association, 1999.

Lindberg, Barbro and A. Rett. Understanding Rett Syndrome: A Practical Guide for Parents, Teachers, and Therapists. Cambridge: Hogrefe & Huber, 1994.

Additional Disorder Specific Resources

Fragile X Syndrome
Down Syndrome
X-Linked Mental Retardation
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